Wednesday, April 22, 2009

Raccoon roundworm Encephalitis

Daniel is now 21 month old, he is cortically blind from Raccoon Roundworm Encephalitis, he developed Infantile spasms 5 months after onset of Encephalitis, from the rarest type of epilepsy and the rarest parasite.
Daniel developed normal and healthy, he could run and talk, till he ingusted these miro-eggs at 14 months old Sept.12/08, that hatched in his body and eat half his brain, Daniel was never near a Raccoon. He is the 15th person in the world diagnoses with raccoon roundworm, and the only case that did not go into a coma, thank god, but he still went blind and when we brought him home he could not crawl, walk nor talk, Daniel will never be the same boy again, he was put on Albendazole and prednisone for 3 months, after 7 month of retraining his brain, He can sit and walk holding my hand, he can see alittle now, navagating tho clutters with his blindsight. "The Light box" and bright lights, strob lights worked very good, but the black and light strips worked the best. As for his development Infantile spasms uncontrolled, he's on Keppra and Vigabatrin, the worst thing about these medications are that he cant talk to tell me if he having the terrfing side effect that they could cause. We are very lucky and thankful that Daniel is with us today, We Hope and pray someday he'll be able to see, or walk or not have a suffer from seizures.

2 comments:

  1. My son also had this happen to him in 2007 he suffered from seizures on a daily basis. Last year he had the vns put in and has made great accomplishments in his development and has gone from 20 seizures a day to 1 a week. He was 18 months old when this happened and he is now almost 8years old.

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  2. http://cavansprognosis.blogspot.com/2011/06/cavans-journey-through-baylisascariasis.html?m=1

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